Results of the survey of the PKU patient`s parents. 3. Attitude to the prenatal diagnosis of phenylketonuria
https://doi.org/10.1234/XXXX-XXXX-2015-10-14-20
Abstract
The attitude of PKU patient’s parents to prenatal diagnosis (PD) and fetus abortion with PKU was studied. The survey involved 187 PKU patient’s mothers living in Moscow, the Moscow Region, Krasnodar Region, St. Petersburg and Rostov region. It was shown, that the birth of the PKU child has affected reproductive plans in 39.6% of respondents, they did not wish have any more children after the birth PKU child. The intention to use the PD PKU were expressed by 81 of respondents (43.3%), and the willingness to terminate a PKU fetus pregnancy were suggested by 53 (65.4%) of them. The choice in favor of abortion a PKU fetus was correlated with the degree of burden of management of PKU child. Despite the fact that less than a half of the respondents were willing to use the PD for the next pregnancy, 76% of respondents considered it useful, and only 10% thought that it should not be used because of the successful treatment of PKU.
About the Authors
V. L. Izhevskaya
Federal State Budgetary Institution «Research Centre for Medical Genetics» of the Russian Academy of Medical Sciences
Russian Federation
Russian Federation
E. A. Borzov
Federal State Budgetary Institution of Science «Institute of Sociology» of the Russian Academy of Sciences
Russian Federation
Russian Federation
L. Yu. Ivanova
Federal State Budgetary Institution «Research Centre for Medical Genetics» of the Russian Academy of Medical Sciences
Russian Federation
Russian Federation
I. V. Zhuravleva
Federal State Budgetary Institution of Science «Institute of Sociology» of the Russian Academy of Sciences
Russian Federation
Russian Federation
E. K. Ginter
Federal State Budgetary Institution «Research Centre for Medical Genetics» of the Russian Academy of Medical Sciences
Russian Federation
Russian Federation
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Review
For citations:
Izhevskaya V.L., Borzov E.A., Ivanova L.Yu., Zhuravleva I.V., Ginter E.K. Results of the survey of the PKU patient`s parents. 3. Attitude to the prenatal diagnosis of phenylketonuria. Medical Genetics. 2015;14(10):14-20. (In Russ.) https://doi.org/10.1234/XXXX-XXXX-2015-10-14-20
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