Reflection and biosociality: autonomy, responsibility and informed consent for biobank
https://doi.org/10.25557/2073-7998.2020.10.66-67
Abstract
The biosocialization of society is a complex of phenomenon, among which, in a philosophical and ethical aspect, the techno-scientific approach to knowledge, the increasing role of autonomy and the problem of reflection stand out. For biobanks, this complex of problems is realized as the complexity of developing informed consent. The issue of genuine informed consent is critical to the success of biobanking. If scientists consider informed consent as a formality, then biobank donors themselves, realizing that their biomaterials may not be used correctly in one of the many projects that are implemented on the basis of biobanks, may not feel a sense of fairness and agreement with the conditions that are offered to them within broad informed consent. Maintaining the idea of awareness is an important condition for the formation of a positive biobanking image.
References
1. Вархотов Т.А., Аласания К.Ю., Брызгалина Е.В., Гавриленко С.М., Рыжов А.Л., Шкомова Е.М. Технонаука и этос ученого: контуры этики биобанкинга глазами российского научного сообщества (по результатам опроса специалистов в области биомедицины и смежных видов деятельности. «ΠΡΑΞΗΜΑ. Проблемы визуальной семиотики». 2018; 4: 61-83. doi: 10.23951/2312-7899-2018-4-61-83
2. Manson N. C. The ethics of biobanking: Assessing the right to control problem for broad consent. Bioethics. 2019; 33(5): 540-549. doi: 10.1111/bioe.12550
3. Weiner K., Martin P., Richards M., Tutton R. Have we seen the geneticisation of society? Expectations and evidence. Sociology of Health & Illness. 2017; 39(7)989-1004 ISSN 0141-9889, pp. 1-16 doi: 10.1111/1467-9566.12551
Review
For citations:
Belyaletdinov R.R. Reflection and biosociality: autonomy, responsibility and informed consent for biobank. Medical Genetics. 2020;19(10):66-67. (In Russ.) https://doi.org/10.25557/2073-7998.2020.10.66-67
Views:
429
Email this article 